华人生死学
把握自主与和谐之间的微妙平衡:中国安宁疗护干预措施文化适应性案例研究
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1.北京慈愿工作站;2.北京清华长庚医院疼痛科

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北京致诚社会组织服务中心基金资助


Navigating the Delicate Balance of Autonomy and Harmony: A Case Study on the Cultural Adaptation of Palliative Care Interventions in China
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    摘要:

    在中国推行安宁疗护面临独特文化挑战,包括死亡禁忌、间接沟通、家庭集体决策等。本回顾性研究采用解释现象学分析法,对一例晚期癌症患者接受文化适应安宁疗护的过程进行质性分析。研究发现三种关键机制有效平衡了关系和谐与患者自主权:(1)引导式卡片游戏促进自主决策;(2)灵性对话推动自我发现与转变;(3)集体音乐会实现个人表达与关系和谐的平衡。研究表明,基于"关系自主"理念、经过文化适应的安宁疗护干预能够在维系家庭关系和谐的同时,有效支持中国患者的自主权和个人成长,为中国临终关怀实践提供文化适应性参考。

    Abstract:

    The implementation of palliative care in China faces distinct cultural challenges, including death taboos, indirect communication styles, and family-centered decision-making. This retrospective study utilized Interpretative Phenomenological Analysis to conduct a qualitative investigation of a terminal cancer patient’s process of receiving culturally adapted palliative care. The study identified three critical mechanisms that effectively balanced relational harmony with patient autonomy: (1) a guided card game facilitating autonomous decision-making; (2) spiritual dialogues facilitating self-discovery and transformation; and (3) a communal concert balancing individual expression with relational harmony. The study demonstrates that palliative care interventions adapted based on the concept of “relational autonomy” can effectively support a Chinese patient’s autonomy and personal transformation while maintaining family relational harmony, providing valuable insights for culturally adapted end-of-life care practice in China.

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  • 收稿日期:2025-11-16
  • 最后修改日期:2025-11-16
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  • 在线发布日期: 2025-12-01
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  • 高苑敏